Successful Clinical Study for Lupus

Yes, There Is Hope!

Disclaimer:  The writer of this article is not a medical professional. The following information is for general informational purposes and is not medical advice. Consult a doctor for medical or health concerns or for more information. See full disclamer at the end of this article.

My experience has been as mother to a lupus patient.  I hope that my experience will encourage you and give you direction in your search for answers.  My daughter has been basically symptom free from lupus for five years due to treatment that she followed while participating in a clinical trial. Her clinical trial ended 3 ½ years ago, and she has not been on any medicine for lupus since then.

If you are suffering from lupus (SLE) or know someone who is, there is hope. Much progress has been made in recent years in the treatment of lupus. While there is presently no permanent, complete cure for lupus, there are good treatment options that may control your lupus symptoms and allow you to obtain a state of remission.

Some lupus patients respond well to anti-inflammatory medicines that are prescribed by 
a rheumatologist. The most basic lupus medicine to fight inflammation is non steroidals (NSAIDS).  Other types of lupus medicines are corticosteroids, antimalarials, and newer treatment options. One treatment has been proven very effective for select patients. For those who do not respond well to any of these options, the rheumatologist may recommend participation in an appropriate current clinical trial. 

Have clinical trials been successful? Yes! New treatment has been studied recently and approved after clinical trials were successful. Talk to your doctor to see if you qualify for this treatment or other treatment options.

If you are not responding well to your treatment for lupus, ask your doctor about a clinical trial.  My daughter suffered the effects of lupus for years. After being on strong medicines with strong side effects and still having severe lupus induced health problems, she participated in a clinical trial.  She responded very well to the treatment. Although not “cured”, the difference in her health is like night and day.  She was suffering dangerously low platelet counts, low red blood counts, and low white blood counts, along with the other typical painful effects of lupus. Her arthritic condition inhibited everyday activity. Walking, even moving, was painful. Today she is active in sports and leads a busy life without taking drugs. She is pursuing a medical career. Unbelievable!

Things to consider if you are interested in participating in a clinical trial:

•    Usually there is no cost.  In some cases the patient may be reimbursed for travel expenses.

•    You must meet certain criteria:  age, severity of illness, need for nonconventional treatment.

•    You should not be at high risk for side effects (based on your medical condition).

By definition, a clinical trial does not yet have long term health statistics. You need to consider the possible unknown side effects. For more information about a clinical trial, you can fill out a profile and be notified of trials at Clinical Connections' website. Another reliable source for information is the Lupus Foundation of America.  A more comprehensive source  on all aspects of lupus is The Lupus Encyclopedia: A Comprehensive Guide for Patients and Families.

Be aware that there is not one treatment that works for everyone. If you read about a cure-all for lupus, it is most likely misleading and may have worked, possibly in combination with other factors, for some - not all, participants.  Although there are some common symptoms, common irritants, and common relief, there is not one treatment that works for everyone. Fortunately, there are new treatments being studied that may help those who do not respond to the treatments that are currently available.

This information is dedicated to all who have lupus and have learned to live victoriously in the face of hardship. What encouragement, determination, and strength you show to the many lives you touch.  

Disclaimer:  This information is not medical advice. It is not intended to diagnose, treat, prevent, or cure any illness. This information should not be used in place of medical advice. This information is the product of personal research, trial and error, experience, success stories, advice, and from talking to lupus patients. I hope that you will profit from this information and that this information will save you time, effort, and frustration as you seek medical help. Please consult a medical professional if you are having possible symptoms of lupus or if you need a medical diagnosis.

Copyright March, 2015 by S. Floresta ©